Protocol of assessment (coordinated by MFAM)
This protocol is the process of multidisciplinary evaluation to establish the profile and the needs of the child.
The experimentation shows the necessity to revise our assessment protocols and to elaborate a new specific protocol of assessment to take into account the specific difficulties of these children, for whom not only the visual difficulties exist, for which professionals are familiar. In this protocol of assessment, we need to take into account the impact of the cerebral problem to adjust to the needs of the children and to adapt the rehabilitation processes proposed by the professionals.
Several countries have tried to adapt some assessment tools. Nowadays, some new professionals are integrated in multidisciplinary team. As example, in MFAM, a neuropsychologist brings her knowledge on the cerebral functioning and especially for children with neuro visual disorders. A collaborative work has been set up between professionals to integrate this expertise/knowledge in the intervention of rehabilitation workers. Other countries have also adapted assessment tools and we need nowadays to clarify and to formalize a detailed and precise assessment protocol as an EU standard.
Methodology and process of this project
- Synthesis of scientific literature on neurovisual disorders and visual impairment.
- Definition of the issue: how to have a better evaluation of children with a double visual and neurovisual symptomatology?
- Construction of relevant hypothesises and concrete objectives :
- Collection of all existing evaluation tools (all partners)
- Elaboration of a complete evaluation protocol comprising the visual and neurovisual aspects, with a multidisciplinary team including ophthalmologists, psychologists, neuropsychologists, orthoptists, paediatricians, …
- Paediatric evaluation
- Ophthalmologist evaluation
- Neuro-ophtalmologist evaluation
- Neuropsychologist evaluation
- Orthoptist evaluation
The overall evaluation protocol has to be supervised by an expert in each domain to evaluate: experts from each country in their domain to validate the different phases of the protocol, in their fields of expertise (ophthalmology, neuropsychology, etc.)
- Adaptation of some exercises for all types of visual profiles.
- All partners make the experimentation of the evaluation protocol with a group of visually impaired children aged from 3 to 12.
- Collection of all partners data from the experimentation
- Statistical analysis of results
- Modifications and corrections
- Validation by a group of experts- This group of experts will be composed by experts in the field of neurovisual disorders. It will not be a scientific committee (which has to be met necessarily some times) but a group who will be informed and also contacted/called out during all the phases of the elaboration to have their point of view/expertise. These experts known in each country of the partnership have been already involved in this process.
- Transmission of the results to all the partnership.